{"id":261,"date":"2026-09-21T18:40:47","date_gmt":"2026-09-21T21:40:47","guid":{"rendered":"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/?page_id=261"},"modified":"2026-09-22T20:54:22","modified_gmt":"2026-09-22T23:54:22","slug":"vozes-do-cenario","status":"publish","type":"page","link":"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/vozes-do-cenario\/","title":{"rendered":"Vozes do Cen\u00e1rio"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"261\" class=\"elementor elementor-261\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b8f0388 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-parent\" data-id=\"b8f0388\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;,&quot;shape_divider_bottom&quot;:&quot;triangle&quot;}\">\n\t\t\t\t<div class=\"elementor-shape elementor-shape-bottom\" aria-hidden=\"true\" data-negative=\"false\">\n\t\t\t<svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewBox=\"0 0 1000 100\" preserveAspectRatio=\"none\">\n\t<path class=\"elementor-shape-fill\" d=\"M500,98.9L0,6.1V0h1000v6.1L500,98.9z\"\/>\n<\/svg>\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9a5de82 elementor-widget elementor-widget-spacer\" data-id=\"9a5de82\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-eef8983 elementor-widget elementor-widget-heading\" data-id=\"eef8983\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">Vozes do Cen\u00e1rio<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5daf57b elementor-widget elementor-widget-button\" data-id=\"5daf57b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/bit.ly\/cenarioentrevistas2026\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Assista aqui<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-8b7327b elementor-widget elementor-widget-spacer\" data-id=\"8b7327b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-d2c98ee e-flex e-con-boxed wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-parent\" data-id=\"d2c98ee\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-87c3c17 elementor-widget elementor-widget-text-editor\" data-id=\"87c3c17\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\"><span class=\"s1\"><b>Diferentes trajet\u00f3rias e perspectivas se encontraram no Cen\u00e1rio 2026, unidas pelo compromisso de transformar escuta, conhecimento e mobiliza\u00e7\u00e3o em avan\u00e7os concretos para as pessoas com doen\u00e7as raras.<\/b><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4693fe7 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"4693fe7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-fafbb17 e-flex e-con-boxed wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-parent\" data-id=\"fafbb17\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-9718bd7 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"9718bd7\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-553016f e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"553016f\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-379fd4f elementor-widget elementor-widget-image\" data-id=\"379fd4f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/01.png\" class=\"attachment-full size-full wp-image-266\" alt=\"\" srcset=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/01.png 400w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/01-300x300.png 300w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/01-150x150.png 150w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/01-200x200.png 200w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fc06d6b elementor-widget elementor-widget-text-editor\" data-id=\"fc06d6b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">\u201cO que faltou na minha vida para salvar meu menino, al\u00e9m de um teste do pezinho? Informa\u00e7\u00e3o. N\u00e3o \u00e9 poss\u00edvel que uma m\u00e3e, mesmo cheia de privil\u00e9gios, leve um ano e dez meses para conseguir o diagn\u00f3stico do filho. O que acontece, ent\u00e3o, com as Larissas e seus Theos nas periferias?\u201d<\/p><p class=\"p1\">\u201cTempo para esses meninos \u00e9 c\u00e9rebro. Diagn\u00f3stico tardio e demora no tratamento podem trazer sequelas avassaladoras. A janela est\u00e1 no come\u00e7o da vida.\u201d<\/p><p class=\"p1\"><b>Larissa Carvalho,<\/b> jornalista, moderadora da Mesa 2 e m\u00e3e de Theo<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-534c56b e-flex e-con-boxed wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-parent\" data-id=\"534c56b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-1b27a8a e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"1b27a8a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-6629398 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"6629398\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-9d092bd elementor-widget elementor-widget-image\" data-id=\"9d092bd\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/02.png\" class=\"attachment-full size-full wp-image-267\" alt=\"\" srcset=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/02.png 400w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/02-300x300.png 300w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/02-150x150.png 150w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/02-200x200.png 200w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-afcd2c0 elementor-widget elementor-widget-text-editor\" data-id=\"afcd2c0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">\u201cA Casa Hunter vem abra\u00e7ando o nosso trabalho e as nossas fam\u00edlias. Estamos conseguindo seguir porque sabemos que existe algu\u00e9m ao nosso lado.\u201d<\/p><p class=\"p1\"><b>Keli Melo, <\/b>m\u00e3e de Idryss<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-26acb03 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"26acb03\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-646f37f e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"646f37f\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2538537 elementor-widget elementor-widget-image\" data-id=\"2538537\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/03.png\" class=\"attachment-full size-full wp-image-268\" alt=\"\" srcset=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/03.png 400w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/03-300x300.png 300w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/03-150x150.png 150w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/03-200x200.png 200w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-d830731 elementor-widget elementor-widget-text-editor\" data-id=\"d830731\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">\u201cEra como se estiv\u00e9ssemos \u00e0 deriva em um grande oceano escuro, sem nenhuma luz. Foi quando encontramos a Casa Hunter, que se tornou nossa luz no meio desse oceano. Hoje somos muito gratos e felizes.\u201d<\/p><p class=\"p2\"><span class=\"s1\"><b>Alessandra e Celso, <\/b>pais de Valentina<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-a78fcdb e-flex e-con-boxed wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-parent\" data-id=\"a78fcdb\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-7c499a5 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"7c499a5\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-12c3854 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"12c3854\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-2e7b910 elementor-widget elementor-widget-image\" data-id=\"2e7b910\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/04.png\" class=\"attachment-full size-full wp-image-269\" alt=\"\" srcset=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/04.png 400w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/04-300x300.png 300w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/04-150x150.png 150w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/04-200x200.png 200w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-3452069 elementor-widget elementor-widget-text-editor\" data-id=\"3452069\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">\u201cAqui n\u00e3o se fala apenas teoricamente: aqui se executa. Cada Cen\u00e1rio constr\u00f3i um caminho para melhorar a realidade das doen\u00e7as raras no Brasil.\u201d<\/p><p class=\"p2\"><b>Carolina Fischinger Moura de Souza, <\/b>m\u00e9dica geneticista e diretora cl\u00ednica da Casa dos Raros<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-03da24d e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"03da24d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-8b847d6 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"8b847d6\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-0bb2f34 elementor-widget elementor-widget-image\" data-id=\"0bb2f34\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/08.png\" class=\"attachment-full size-full wp-image-273\" alt=\"\" srcset=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/08.png 400w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/08-300x300.png 300w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/08-150x150.png 150w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/08-200x200.png 200w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-11b07f8 elementor-widget elementor-widget-text-editor\" data-id=\"11b07f8\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">\u201cSe a sociedade n\u00e3o se movimenta, o Estado n\u00e3o o far\u00e1. O que a Casa Hunter faz \u00e9 dar voz e representar uma parcela importante da popula\u00e7\u00e3o: as pessoas com doen\u00e7as raras.\u201d<\/p><p class=\"p2\"><span class=\"s1\"><b>Dr. Gonzalo Vecina,<br \/><\/b>m\u00e9dico sanitarista<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-e251387 e-flex e-con-boxed wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-parent\" data-id=\"e251387\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-00ec431 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"00ec431\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-ddbdbba e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"ddbdbba\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6f48f17 elementor-widget elementor-widget-image\" data-id=\"6f48f17\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/05.png\" class=\"attachment-full size-full wp-image-270\" alt=\"\" srcset=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/05.png 400w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/05-300x300.png 300w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/05-150x150.png 150w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/05-200x200.png 200w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4fdc13c elementor-widget elementor-widget-text-editor\" data-id=\"4fdc13c\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">\u201cN\u00f3s temos cientistas de ponta e tecnologia para transformar pesquisa em tratamento, mas precisamos de mais incentivos, mais recursos e menos burocracia para que essas terapias realmente cheguem \u00e0 popula\u00e7\u00e3o.\u201d<\/p><p class=\"p2\"><span class=\"s1\"><b>Dra. Mayana Zatz,<\/b><\/span><\/p><p class=\"p3\">professora de gen\u00e9tica<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-bb0d37a e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"bb0d37a\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-1009df9 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"1009df9\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-f77a959 elementor-widget elementor-widget-image\" data-id=\"f77a959\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/06.png\" class=\"attachment-full size-full wp-image-271\" alt=\"\" srcset=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/06.png 400w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/06-300x300.png 300w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/06-150x150.png 150w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/06-200x200.png 200w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5f4ceed elementor-widget elementor-widget-text-editor\" data-id=\"5f4ceed\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">\u201cN\u00e3o \u00e9 apenas uma quest\u00e3o de criar leis. \u00c9 preciso que o gestor compreenda as necessidades das pessoas com doen\u00e7as raras e comece a agir.\u201d<\/p><p class=\"p1\"><b>Natan Monsores,<br \/><\/b>coordenador-geral de doen\u00e7as raras do Minist\u00e9rio da Sa\u00fade<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-f75e369 e-flex e-con-boxed wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-parent\" data-id=\"f75e369\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-8f2aab2 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"8f2aab2\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-66f5935 e-con-full e-flex wpr-particle-no wpr-jarallax-no wpr-parallax-no wpr-sticky-section-no wpr-column-slider-no wpr-equal-height-no e-con e-child\" data-id=\"66f5935\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t<div class=\"elementor-element elementor-element-6f7c25e elementor-widget elementor-widget-image\" data-id=\"6f7c25e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"400\" height=\"400\" src=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/07.png\" class=\"attachment-full size-full wp-image-272\" alt=\"\" srcset=\"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/07.png 400w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/07-300x300.png 300w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/07-150x150.png 150w, https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-content\/uploads\/2026\/09\/07-200x200.png 200w\" sizes=\"(max-width: 400px) 100vw, 400px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-64d3de3 elementor-widget elementor-widget-text-editor\" data-id=\"64d3de3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p class=\"p1\">\u201cNingu\u00e9m consegue fazer nada sozinho. Reunir diferentes p\u00fablicos e partes interessadas, da pol\u00edtica \u00e0 sociedade civil, \u00e9 essencial para construir um cen\u00e1rio cada vez melhor para as pessoas com doen\u00e7as raras.\u201d<\/p><p class=\"p2\"><span class=\"s1\"><b>Daniela Mendes, <\/b><\/span><\/p><p class=\"p3\">superintendente do Instituto J\u00f4 Clemente<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Vozes do Cen\u00e1rio Assista aqui Diferentes trajet\u00f3rias e perspectivas se encontraram no Cen\u00e1rio 2026, unidas pelo compromisso de transformar escuta, conhecimento e mobiliza\u00e7\u00e3o em avan\u00e7os concretos para as pessoas com doen\u00e7as raras. \u201cO que faltou na minha vida para salvar meu menino, al\u00e9m de um teste do pezinho? Informa\u00e7\u00e3o. N\u00e3o \u00e9 poss\u00edvel que uma m\u00e3e, mesmo cheia de privil\u00e9gios, leve um ano e dez meses para conseguir o diagn\u00f3stico do filho. O que acontece, ent\u00e3o, com as Larissas e seus Theos nas periferias?\u201d \u201cTempo para esses meninos \u00e9 c\u00e9rebro. Diagn\u00f3stico tardio e demora no tratamento podem trazer sequelas avassaladoras. A janela est\u00e1 no come\u00e7o da vida.\u201d Larissa Carvalho, jornalista, moderadora da Mesa 2 e m\u00e3e de Theo \u201cA Casa Hunter vem abra\u00e7ando o nosso trabalho e as nossas fam\u00edlias. Estamos conseguindo seguir porque sabemos que existe algu\u00e9m ao nosso lado.\u201d Keli Melo, m\u00e3e de Idryss \u201cEra como se estiv\u00e9ssemos \u00e0 deriva em um grande oceano escuro, sem nenhuma luz. Foi quando encontramos a Casa Hunter, que se tornou nossa luz no meio desse oceano. Hoje somos muito gratos e felizes.\u201d Alessandra e Celso, pais de Valentina \u201cAqui n\u00e3o se fala apenas teoricamente: aqui se executa. Cada Cen\u00e1rio constr\u00f3i um caminho para melhorar a realidade das doen\u00e7as raras no Brasil.\u201d Carolina Fischinger Moura de Souza, m\u00e9dica geneticista e diretora cl\u00ednica da Casa dos Raros \u201cSe a sociedade n\u00e3o se movimenta, o Estado n\u00e3o o far\u00e1. O que a Casa Hunter faz \u00e9 dar voz e representar uma parcela importante da popula\u00e7\u00e3o: as pessoas com doen\u00e7as raras.\u201d Dr. Gonzalo Vecina,m\u00e9dico sanitarista \u201cN\u00f3s temos cientistas de ponta e tecnologia para transformar pesquisa em tratamento, mas precisamos de mais incentivos, mais recursos e menos burocracia para que essas terapias realmente cheguem \u00e0 popula\u00e7\u00e3o.\u201d Dra. Mayana Zatz, professora de gen\u00e9tica \u201cN\u00e3o \u00e9 apenas uma quest\u00e3o de criar leis. \u00c9 preciso que o gestor compreenda as necessidades das pessoas com doen\u00e7as raras e comece a agir.\u201d Natan Monsores,coordenador-geral de doen\u00e7as raras do Minist\u00e9rio da Sa\u00fade \u201cNingu\u00e9m consegue fazer nada sozinho. Reunir diferentes p\u00fablicos e partes interessadas, da pol\u00edtica \u00e0 sociedade civil, \u00e9 essencial para construir um cen\u00e1rio cada vez melhor para as pessoas com doen\u00e7as raras.\u201d Daniela Mendes, superintendente do Instituto J\u00f4 Clemente<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"footnotes":""},"class_list":["post-261","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-json\/wp\/v2\/pages\/261","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-json\/wp\/v2\/comments?post=261"}],"version-history":[{"count":10,"href":"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-json\/wp\/v2\/pages\/261\/revisions"}],"predecessor-version":[{"id":500,"href":"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-json\/wp\/v2\/pages\/261\/revisions\/500"}],"wp:attachment":[{"href":"https:\/\/casahunter.org.br\/revistacenariodoencasraras2026\/wp-json\/wp\/v2\/media?parent=261"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}