I was only confirming the MPS diagnosis when a cousin died, around 2008. I spent almost a year just taking exams – urine, radiography, blood, tomography, everything. I also have pigmentary retinosis, which my doctor believes is a result of having MPS. I decided to seek treatment and information about the disease. That was when my ophthalmologist told me about CASA HUNTER. I mentioned this to my cousins, who also have MPS, and coincidentally, we were all going to take exams, and we decided to go all together. For me, the first contact with CASA HUNTER, with Tony, was surreal! Right away, he hugged me, talked to me, like he was already my friend… He told me a lot about MPS that I did not know, talked about his son, showed me the NGO and said he wanted to help me. Then, we turned in the paperwork to request the medication. I am waiting for the court decision. CASA HUNTER supported me in the throughout all the exams and in organizing the papers. In fact, it gave me hope. I had no prospects, and now, I have a chance to take the medication. If it were not for CASA HUNTER, I would not be able to do all this alone. It is a long, hard road, but nobody can do it alone, you have to ask for help. And the best place to get help is CASA HUNTER.